Social gatherings can be challenging when you’re living with Parkinson’s. (AND Fibromyalgia, Autism and similar conditions.) During this busy season of parties and events, I often find myself reflecting on how best to navigate these situations. I wanted to share an open letter I’ve written—something that helps put my experiences into perspective and might resonate with others in similar situations.

Dear Friends and Family,

Thank you so much for thinking of me and inviting me to your [event or gathering]. I deeply value our connection and the time we spend together, and I appreciate your kindness in including me.

I wanted to share a little about what I’m managing these days so you can better understand why I might need to decline or take a rain check on some invitations.

Living with Parkinson’s comes with unique challenges, especially in social situations. Large gatherings or lively events can sometimes feel overwhelming. My energy levels can be unpredictable, and keeping up with conversations in those settings can be draining. At times, I might struggle to stay present—my mind can go blank, or I might ramble or say something unrelated without meaning to. There are even moments when my emotions feel amplified, and I react in ways that might seem over the top, like laughing or crying more intensely than usual.

Please know how much I value our relationship and want to stay connected. While bigger gatherings can be difficult, I’ve found that smaller, more intimate meetups—just one-on-one or with a couple of friends—are easier for me. These allow me to be fully present and enjoy the time together without feeling overstimulated or overly tired.

It’s not that I don’t want to see you or join in the fun; it’s about managing my well-being so I can show up as my best self. If you’re ever up for a quieter get-together, I’d love to plan something with you. And for larger events, I may need to decide closer to the date if I feel up to it.

Thank you for your understanding and support—it truly means the world to me. I’m grateful to have you in my life and for your patience as I navigate these changes.

With love

❤️❤️❤️